This is the letter from Vlad's mother:
Our story: Vladik was born premature in the 29th week of pregnancy. An emergency cesarean section was done. The baby was born weighing 1600 kg and 43 cm.
A day later I saw my son for the first time, he was in intensive care unit, in an incubator. It was tiny
being, hung with wiring and sensors.
Every day the diagnoses grew like a snowball. On the third day he developed
bilateral prnevmothorax, as a result of which, from my baby’s chest, protruded
two tubes and the apparatus breathed for him. Intraventricular hemorrhage in the brain 3-4
degree, which led to hydrocephalus.
1.5 months after the birth, Vladik gained 2,600 kg, and we were transferred to
Neurosurgical Department of the 20th hospital in Krasnoyarsk. Here we are in common
room spent 4.5 months. When my son was 3 months old, they installed
shunt in him. Everything was fine, we were already preparing for discharge, but shunt dysfunction began.
Made a revision of the shunt. After the revision, complications appeared: cyst,
hyperdrenning (shunt downloads fluids more than necessary), craniosynostosis
(the skull bones slept). Krasnoyarsk neurosurgeons could not help us.
The federal neurosurgical center in the city of Tyumen took us for an operation.
November 2012 endoscopic cyst fenestration was performed. And in February 2013
years have done an endoscopic surgery to cut the fused suture on the skull and
changed the shunt, setting the pressure that helps my son.
After five operations that Vladik had been destined to undergo, we actively began
to rehabilitate. Conducted massage courses and exercise therapy, went to the pool, did
vestibular gymnastics, attended osteopath, and, of course, drug therapy.
The second and third year of life we spent in permanent rehabilitation. Unfortunately,
the measures taken did not give a positive result, so great was the demage
to the brain.
Now we have learned to simply live with what we have. We are no longer fighting and we do
hope, and we just live, giving care and love to my son. We apply in
home rehabilitation principles of the Kinesthetics Concept.
Vladik’s physical condition is good.
German coaches who come to teach Kinesthetics in Russia when they meet
Vlad, gave me advice: "Teach him to communicate!"
This phrase has entered into a stupor. Appeal to the local Pedagogical University on
Department of "Special Pedagogy and Psychology", did not give a positive result.
Department specialists gave a negative answer. Vlad may not be capable to communicate!
As they say, the Internet always helps. For me it was the discovery of the whole world when I
found information that such children as Vlad really learn to communicate by
means of alternative communication. I began, to study this topic.
Since Vlad has significant motor limitations, for learning
he needs special communications in the form of buttons.
We ask you to help and purchase for Vlad a button controller for
control toys and a button to communicate.
Sincerely, Svetlana Perevalushko.